Pictures!!!

As promised, I've finally got some pictures together for sharing! After spending way too many hours on this site unsuccessfully trying to get the pictures uploaded and laid out, I finally resorted to Photobucket. Please visit: http://s727.photobucket.com/albums/ww271/patnaud/Callie%20and%20the%20Boys%20Sept%202010/

Apparently, blogspot is not user friendly when it comes to posting more than just a few pictures. So to give everyone a "taste" of what's at the link, here are a couple of my favorites!

Callie is doing well at home. We are still getting adjusted and trying to set up routines, which have been a bit disrupted for everyone! She is eating and gaining weight well, averaging about 1/2 pound a week! She is now over 4 1/2lbs.

Henry is doing well. It's been a month since the tubes were placed in his ears and he hasn't had any ear infections! He has been a bit jealous of Callie and we are dealing with some typical 2-year old behavior (throwing, biting, hitting, etc!).

Stewart is also doing well. He started back at school last week after being tracked out. Stewart's 7th birthday is in a week and we are getting ready for a big soccer birthday party!

I love this time of the year! October is usually a busy month for us... Stewart's birthday, the NC Fair, corn mazes, Halloween! And the weather is turning beautiful!

Homecoming!!!

Callie came home on Monday, September 20th, weighing a whopping 3lb, 8oz! She was 20 days old and a day shy of 38 weeks gestation. She has been doing well at home. It has been a bit of an adjustment for her getting used to a new environment (temperature, noises, etc). Her feeding volumes have dropped slightly as she seems to loose energy during feeding, but it is probably due to the energy she is using adjusting to home! We did take her to the pediatrician’s office Tuesday and she weighed in at 3lb, 10oz. Hopefully, in a couple of days she’ll start adjusting and picking up her volumes.

Since Callie is so tiny and still adjusting to home, we are trying to keep things quiet and easy for her. Although we would love to have visitors, we’d like to keep things quiet for a few weeks to allow her to adjust, as well as put on some weight and build up her immune system. Although the weather is nice and illnesses are not as frequent, Callie’s immune system is very fragile and her low weight would make it very difficult for her to fight off even a slight cold. Please remember, RSV season technically begins in October (although people can still pick up the virus any time of the year!). Due to Callie’s gestational age at birth, she will probably not qualify for the RSV vaccine (Synagis). As many of you remember, Henry got RSV while still in the NICU in late April of 2008 (the end of RSV season). He weighed about 4 ½ lbs at the time and was significantly impacted by the virus, which caused him to be on a ventilator for 5 days and extend his NICU stay by several weeks while he recovered. Obviously, keeping illness away is quite a challenge with two brothers in school/daycare! So, we have been practicing LOTS of hand washing, changing clothes, coughs and sneezes away from the baby, etc!!

Callie will have several appointments over the next several months. Next week she will have an appointment to examine her eyes for maturity and ROP (Retinopathy of Prematurity). ROP is more likely in babies who require oxygen support after birth; however, babies who are smaller than their gestational age are also required to be examined. Callie will also have another pediatrician appointment next week to check her weight and perform some follow-up labs. She will receive her 2-month vaccinations in November. Callie will also be followed by Wake Med’s Special Infant Care Clinic (SICC) to ensure that she is gaining weight and developing appropriately. Like Henry, Callie also qualifies for services through Wake County’s Early Intervention (EI) program. We will be meeting with her case manager next month.

The boys are very excited about Callie’s homecoming! Stewart is very interested in Callie and is very concerned with her well-being. Henry is also very interested in Callie and needs to be reminded to be “gentle!” Callie’s new bedroom is coming together well, with the new lavender walls adding a touch of “girl” to the house!

Henry seems to be doing well after having the tubes placed in his ears. He has picked up a cold and was complaining that his ear hurt this morning. Sigh… we’ll have the doctor check his ears today. We heard from his GI nurse practitioner last week that the biopsy results from his endoscopy are clear! What good news and such a relief! This means that Henry has been tolerating the small amounts of dairy he has been getting through occasional foods like pancakes (or “ca’cakes” as Henry calls them!). We haven’t heard what his allergy results are yet, but should know early next week. We are hoping that his allergy levels have decreased, indicating that he will likely grow out of his dairy allergy! We are keeping our fingers crossed!

Sorry, no pictures this time!!! I’ll try to post some in a few days!

A Time to Brag!

Everybody is doing very well!

Callie is 2 weeks old, or 37 weeks gestation. She is still in her isolette due to her small size. Although she is maintaining her own temperature well, the isolette is enclosed, which helps limit noise. Since Callie doesn’t have to “work” to filter out noise, the isolette helps her maintain her energy so that she can grow well each day. The isolette also helps her not work so hard to maintain her own temperature. Callie now weighs 3lbs, 3oz!!!

On Saturday, Callie decided she was done with her feeding tube… she pulled it out three times before the nurses finally decided to just leave it out. She has been taking her full feeds, which is now up to a minimum of 28mls (for reference, 30mls is 1oz), all by herself since Sunday! Callie and I have also been successfully breastfeeding! This is such an accomplishment, and a goal that I very much desired! Ignorance and poor nurse support ended my attempts to breastfeed Stewart. Henry and I rode the breastfeeding roller coaster from hell that ended with a screeching halt. Callie was quick to learn and has breastfed for many of her feedings!

Callie has had several lab tests over the past couple of days. Her bilirubin levels have resolved. Her red blood cell count is appropriate and she is making her own red blood cells. Will and I also requested that a Complete Blood Count (CBC) be taken. A CBC measures the concentration of white blood cells, red blood cells, and platelets in the blood. The test details the concentration of the various types of white blood cells, as well, including Eosinophils. We were interested in knowing if Callie’s Eosinophils were elevated, as high Eosinophil counts were the only sign of a problem with Henry when the cow’s milk allergy was first suspected. Fortunately, all of her counts were normal!

The neonatologists are very pleased with Callie’s progress. In order to go home, babies have to achieve four goals: 1) no apneas (pauses in breathing), 2) taking all feeds orally (no tube feedings), 3) gaining weight, and 4) maintain their own body temperature. Callie is successfully doing each of these things. Now she needs to do all of these things together. On Thursday, the plan is to move Callie to an open crib. Once this happens, she will need to show that she can maintain her own temperature, filter out noises, continue to take all her feeds orally, and continue to gain weight. Once she has successfully accomplished this for several days, we can go home! If she is able to do all of these things, she could go home as early as next week! We are very excited and proud of our little girl!

This picture of Callie was taken today and shows her typical sleeping position with her arm draped over her face! In fact, we were never able to get good ultrasound pictures of her face because her arm or hands were always in the way! I’ve been told that this was also the typical sleeping position of her Great Grandmother Callie, who she is named after! Here is a video link of Callie: http://www.youtube.com/watch?v=rb8pHbyQST0

Henry had surgery Monday at UNC for his ear tubes and endoscopy. The surgery went very well. The ENT observed a lot of fluid in Henry’s right ear and was able to drain much of it. She also looked at his adenoids and it was decided not to remove them at this time. The GI specialist observed normal looking esophagus, stomach, and intestines. Small biopsies were taken from each of these areas to be analyzed for Eosinophils. It will take a couple of weeks before we have the results. In addition, blood was taken to be analyzed for cow’s milk allergy, which will also take a couple of weeks for the results. Although the surgery was not scheduled until mid-afternoon, Henry recovered very well. He was running around playing with Stewart later that night! Prior to the surgery, Henry was given Versed to help relax and calm him. They should’ve given me some of that before my C-section!! Henry was quite the smiling, wobbly toddler! We couldn’t help but take a quick video! http://www.youtube.com/watch?v=B1WhfdI9w8E

Stewart is also doing well! His last day of his 1st nine weeks of 2nd grade finished up on Friday. He came home with a good report card! His teacher noted that he has mastered his math skills and needs to continue practicing reading and writing. He is enjoying soccer camp this week and we are looking into other types of camps for his remaining two weeks to try and vary his track out activities.

Happy 1 Week Birthday, Callie!

Callie is one week old today, or 36 weeks gestation! She is still doing very well! They are continuing to watch her bilirubin levels, which increased slightly over the past few days. This morning, her bilirubin decreased, which is good news! So, she has been able to avoid the phototherapy.

Yesterday, her feeds were increased and she is now getting the “full feeds” for her current weight, which is 25mls (or just below an ounce) of breastmilk every 3 hours. They also began supplementing my breastmilk with a formula known as Enfacare (which is specially designed for preemies). Supplementation provides 2 additional calories per ounce of breastmilk. It also provides vitamins and minerals that are not present in breastmilk but are usually supplied during the last weeks of pregnancy, such as calcium and phosphorus, which are important for bone health. Since Callie is up to “full feeds”, she no longer has an IV since she does not require any additional fluids. Callie weighs 1240g, or 2 pounds, 11 ounces.

Today, Callie was trying to show everybody that she is a big girl! She has remained in an isolette, which has been set at its lowest temperature setting, so that she does not have to work hard to maintain her own temperature. Apparently, she doesn’t have to work too hard because she has been hot all day! We have even removed her blankets and clothes to try to keep her cooler. Babies are not usually able to maintain their own temperature until they reach approximately 1500g (or ~ 3 ½ pounds). However, most babies Callie’s age are already above that weight and are “mature” enough to regulate their own body temperature. Although Callie is old enough, the doctors are not comfortable taking her out of the isolette due to her low weight.

Callie had a head ultrasound this morning to check for signs of an intraventricular hemorrhage (IVH), or bleeding in the brain. This type of hemorrhage is more often seen in preemies born at early gestational ages or low birth weight preemies and typically occurs within the first week of life. Although we haven’t received the formal report, the technician told us that he did not see any signs of an IVH.


Henry had his hearing screening this morning. The purpose of the screening was two-fold; it is a requirement for his next evaluation with Wake County’s Early Intervention Program (which should occur by the end of the year), and it is a pre-op requirement for getting his ear tubes. The results were a surprise to us… Henry has moderate hearing loss in his right ear. The good news is that it is not expected to be permanent. It is expected that the hearing loss is a result of fluid build-up behind his eardrum, which is preventing his eardrum from moving properly in response to sound. The persistent presence of fluid behind his eardrum could be the culprit for many issues we have seen with Henry, such as poor balance (noted by his PT and OT), slow speech emergence, feeding difficulties, and possible may be contributing to his sensitive gag. We are still waiting for his surgery date, but are hopeful that it may be scheduled next week.

Stewart is doing great! He scored a goal in his soccer game tonight! This is his last week of school before he tracks out for a 3 week break!

Here’s a cute little video of Stewart and Henry playing air hockey! http://www.youtube.com/watch?v=8YSVYp9dlQg

Baby Callie

Callie is doing very well! She is 5 days old today! As with many preemies and even full term babies, Callie’s bilirubin levels increased and she required phototherapy on Friday. Her levels returned to normal very quickly, though, and the lights were removed Saturday morning.

Due to the c-section and some of the medications I’ve been taking, my body has been slow to produce breastmilk. We don’t want to hold Callie back from eating, so she was started on Enfamil Preemie Formula Friday afternoon. My supply has increased slowly over the past couple of days, so she is now getting mostly breastmilk. She has done very well with her bottles! She is able to eat many of her bottles by herself. However, since she is so small and runs out of energy quickly, a nasal gastric (NG) tube has been placed through her nose to help her finish her bottles. As with all newborns, Callie’s weight dropped slightly after birth (down to 2lb, 8oz), but she has quickly made it up and now weighs 1200g, up from her birthweight of 1180g.

Callie is still in an isolette to help her maintain her body temperature. She is doing so well that the isolette temperature is set at its lowest temperature. She will probably stay in the isolette longer than she needs so she doesn’t have to work so hard and burn energy to maintain her own temperature.

So far, Callie’s experience has been very different from Henry’s. Our emotions and thoughts are in different places this time. Fear and the unknown have been replaced with knowledge, confidence, and directed questions. Callie has come to us as an “older” and healthier baby. We are aware of the possible risks Callie may still face and we also know what needs to be done for her to make progress. The staff at Rex has been great! The neonatologists talk with us almost daily and are always available via pager if we have any questions. Since we have had a preemie birth before, I think it is much easier for us and the staff to speak freely in great lengths about the best care for Callie. Often, there may be varying opinions on medical care provided to preemies, and we have been happy with the approach and direction the team at Rex has taken with Callie. And as expected, we have been a part of that process.

Today, we talked about fortifying my breastmilk. It is common practice to fortify breastmilk with other formula to provide additional nutrients as well as additional calories to help with weight gain, especially with babies born IUGR. There has been some debate about when and what type of formula to supplement with. We want to make sure that changes are not made too quickly and possibly disrupt Callie’s digestive system as well as ensure that the formula used to fortify is the best pick for Callie. Callie’s volumes are slowly increasing, as tolerated, to bring her intake up to achieve maximum growth. Formula supplementation will likely occur in the next day or so.

Welcome Callie!

Callie Elizabeth Patnaud has arrived! Callie made her early entry Tuesday, August 31st, at 9:57pm weighing 2lbs, 10oz and measuring 15 inches! She was born at exactly 35 weeks. Her delivery went smoothly, as planned, and she entered the world with a healthy set of lungs!

The decision to deliver Callie early was made at my appointment on Tuesday following the growth scans and ultrasound. Previously, at 32 weeks, the doctors had estimated her weight to be 2lb, 15oz. After Tuesday’s growth scans, her estimated weight was 3lb, 2oz. In addition to very poor growth between 32 and 35 weeks, the amniotic fluid level had decreased by over half since the previous week. As a result, Callie did not pass her Biophysical Exam. You can imagine our surprise when we learned that Callie’s birth weight was ½ lb less than their prediction!

Callie is 2 days old and is doing very well! She has not required any oxygen intervention and has been breathing completely on her own. Since she is small, they have her in an isolette to help maintain her body temperature. Since her GI system is young, they have started her on TPN, which are fluids with protein. Although Callie is small, she is developmentally a 35 weeker. She and I were able to practice breastfeeding today! It went well, but we still have a long way to go! Since Callie is a “late term” preemie she does not need the critical care provided through Duke. Instead, we are at Rex Hospital where we have been very impressed with the Special Care Nursery and team of nurses and neonatologists.

Stewart is very excited about his little sister! He got the opportunity to meet and visit Callie today and really enjoyed getting to be a BIG brother! Henry is still a little young to understand that he now has a little sister, but he was able to visit me today in the hospital!

Keep watching out for updates!

Happy Summer!

So sorry it has been so long since I have posted. There has been so much going on over the last several months that it’s hard for me to keep up with it all!

I guess the biggest news is that I am currently 34 weeks pregnant with a little girl (Callie Elizabeth)! Given Henry’s rough entry into the world, we were a bit hesitant to make any big announcements. This pregnancy is going well but not without some minor issues. At 18 weeks the doctors discovered that the baby has a Single Umbilical Artery (SUA). Henry also had an SUA… this is where the umbilical cord has one artery and one vein. Usually, the umbilical cord should have two arteries and one vein. Apparently, I am very rare because this does not usually happen to the same person more than once… lucky me! At 24 weeks the doctors discovered that the baby was measuring small, estimated size was in the 17th percentile. At 28 weeks, her estimated size had dropped to the 13th percentile. As a result, the doctors felt it best for me to go on bedrest at home. So, I’ve been trying my best to sit here in bed for the past 6 weeks! I have also been seeing the doctors twice a week for ultrasounds to ensure the baby is progressing well and not in any distress. At my 32 week appointment, the baby remained consistent with her weight and is in the 12th percentile. At this point, she should be just over 3lbs (babies at 33 weeks typically measure about 4.5lbs). At my 35 week appointment next week, they will measure her size again (this is only done every 3-4 weeks). My ultrasound last week identified some minor changes in blood flow and with the placenta, but at this point there is nothing significant to worry about. The doctors did decide to go ahead and give me the steroid injections to help boost the baby’s lung development. These steroids are typically given when doctors feel that a baby may be born soon, as they are the most effective several days prior to delivery. However, the steroids are not generally given after 34 weeks. Since there are no negative effects from receiving the steroids, it was agreed to go ahead and get them, just in case!

There are also a lot of updates to give about Henry! Henry started daycare the end of April after my last post. Daycare is like a double-edged sword! It has been absolutely fantastic in regards to his socialization skills, sensory integration, and gross and fine motor skills! His speech has really taken off and he “talks” constantly! He has done really well adjusting to different textures and tolerating different sensory experiences. This has been the most obvious with feeding. Prior to daycare, Henry would vomit due to the texture of foods such as mandarin oranges or peaches. Now, he gobbles them up! Eating around the other kids has also helped him to start drinking from a sippy cup (which he wouldn’t even allow to touch his mouth prior to daycare). And as long as Henry is healthy, he eats very well at daycare (with some encouragement from his teachers).

Unfortunately, Henry has picked up repeated colds and ear infections since starting daycare. He has dropped weight and is just over 21lbs. He eats very well when he is healthy, but the next ear infection is devastating for his weight. He has been unable to gain back what he has lost over the past 3 ½ months. The primary issue with the colds and ear infections are his sensitive gag, which results in vomiting almost daily. As a result, his GI nurse (Nannette) has us trying Eyrthromycin again to help empty his stomach faster. We tried this about a year ago and Henry didn’t tolerate it well. Fortunately, he has done much better with it over the past month and it does seem to be helping him keep his food down better. Henry is still taking Prevacid for his reflux and we continue to give him Periactin as an appetite stimulant (although we’re not sure how effective that really is for him). He also continues to get a daily Probiotic.

We visited with an ear, nose, and throat doctor last week and have decided to get Henry tubes for his ears to help prevent the repeated infections. Hopefully, he’ll get those sometime next month! We are also trying to set up a follow-up endoscopy with GI at the same time so they can take care of both procedures at once. Henry has not had an endoscopy since last Nov when his Eosinophilic Gastritis was first diagnosed. So, we are very interested to know how things are looking. And finally, Henry still has the hernia which has not been repaired yet. We are hoping to follow up with the surgeon sooner rather than later to see if we can get it taken care of. It will not happen at the same time he gets the ear tubes, but maybe sometime later this year or the beginning of next year.

Stewart is doing really well! He started second grade in July and is just a few weeks away from completing the first 9 weeks and tracking out! We have noticed a big improvement in his reading and his interest in reading since starting second grade. Reading seems to be an area where Stewart struggles the most. I’m not surprised that math seems to be second nature to him! Stewart also continues to be very active with soccer. He has continued to play indoor soccer on his Select Team. He also played outdoor soccer this past Spring with Will coaching. With the baby coming soon, we have decided to take a break from outdoor soccer this Fall, but Stewart will continue to play indoor soccer. Over the summer, Stewart participated in two 3 verses 3 soccer tournaments. They were very exciting (and hot!) weekends and the boys all played well!

Before going on bedrest in July, we were able to make a trip to Topsail Beach for a nice vacation! The boys really enjoyed the beach and playing in the ocean! It was nice to get away from everything! Henry has discovered the movie “Cars”, and it has somehow become a daily “watch” for us! His two favorite cars to play with are of course, Lightening McQueen and The King. No other cars will do, but anyone else is welcome to play with the other cars! Stewart lost his second tooth a couple of weeks ago and is very proud of the new gap in his mouth! Starting this weekend, we are having some modifications made to our bonus room upstairs… the room will be divided so that there will be a smaller bonus room and a new bedroom for Callie!

Although things are a bit hectic right now, it seems that things should be falling into place soon. I’ll try to update more often, especially with Callie’s pending arrival!

Let's March for Babies!

So sorry that it has been so long since our last update! Things have been going really well! Henry has been eating great and gaining lots of weight! I noticed in the last update on January 5th that Henry weighed right at 19lbs. Over the last 3 ½ months he has gained 3 ½ lbs and now weighs 22 ½ lbs!!!! This is such an amazing accomplishment considering this type of weight gain (about 1lb per month) is usually seen between birth and 1 year. Typical weight gain between 1 and 2yrs of age is between 3 and 5lbs and Henry has accomplished this in just a few months! We are so proud of him!

Henry’s feeding therapy appointments have decreased to once a month and his PT appointments are now every other week. OT has been going well and Henry is learning how to “get messy!” Now that Henry is becoming a better eater and we are leaving the cold weather and risk of illness behind, we are moving forward with placing Henry into daycare. We are really excited about the new experiences and socialization Henry will get from daycare. His teachers are excited and the daycare is prepared to work around his dairy allergy. We’ll start the transition next week!

The only setback Henry has had is dealing with a series of ear infections. Since December, Henry is on his 4th round of antibiotics and 3rd ear infection (this time in both ears!). Unfortunately, Henry’s body does not tolerate antibiotics well, so we have struggled with finding the right antibiotic without causing too much upset. Other than antibiotics, the only prescribed medication Henry is taking is Prevacid, for reflux. He continues to get a daily multivitamin and probiotics.

It’s that time of year again! March for Babies!!!
Team Patnaud is walking again with the March of Dimes on April 24th to help improve the health of babies by preventing birth defects, premature birth and infant mortality. We hope that you will join us by walking and/or donating to this worthy cause. Please visit Team Patnaud and click “Join this Team” or “Donate to this Team”:

www.marchforbabies.org/team/t1357703

The money raised for the March for Babies will help:
- support all-important research offering preventions and solutions for babies born too soon or with birth defects,
- educate women on things they can do to increase their chances of having a healthy baby,
- provide comfort and information to families with a newborn in intensive care,
- push for newborn screening and health insurance for all pregnant women and children.

Nationally, 77 cents of every dollar supports research and programs that help moms have full-term pregnancies and healthy babies. In NC, 92 cents of every dollar supports research and programs!!!

If you’d like to read more about Henry’s journey prior to moving to our new blog, visit CarePages at https://www.carepages.com/carepages/henrysjourney.

Happy New Year!

The boys had a great Christmas! It was nice to have such a long break with all of us at home together. Stewart was really excited about Santa this year and was thrilled to pass off his wish list to Santa (of course, we snuck it back into my purse for safe keeping!). Henry was also excited to see the presents under the tree. Although he didn’t unwrap anything himself, he enjoyed playing in the boxes!

Although both boys were on antibiotics before the holiday break, we ended up having a very healthy break. I’m sure someone will pick up something by the end of this week once we are all exposed to school/work germs again. Oh well… we’ll just keep practicing lots of hand washing!

Henry has done a great job eating and gaining weight over the past few weeks. His G-tube wound has healed up nicely and now just looks like a second belly button! He is also much more comfortable moving around on his belly and can now slide down things (like the couch and the stairs) on his belly, something he wasn’t able to do before. He is now eating from a spoon! Unfortunately, it’s not so much the spoon now but what’s on it! He still will not eat any purees, but has fallen in love with rice, couscous, and peas! He has also decided that anything we are eating, he should be eating too! As a result, we must be careful to ensure that there is something on our plates that is dairy-free that he can enjoy with us! Due to his progress, we have reduced his feeding therapy appointments to every other week. He still needs to strengthen his muscles for chewing and also work on drinking from a cup.

Henry will start to receive Occupational Therapy (OT) this year to address his sensory issues. Although I feel that his sensory issues are minor, we have seen that they have inhibited him, especially with feeding. There are many things that Henry wants to eat and will try, but he gets frustrated and upset because he doesn’t want to touch/hold certain foods. Once this happens, he stops eating altogether. An Occupational Therapist will work with Henry to overcome this. We are currently working on identifying an OT.

Before the holidays, we met with a Nutritionist at UNC. She was very happy with the progress he is making and we are happy to share that he is now on a growth chart! Although he is still under the 3rd percentile for height and weight, his height to weight ratio is at the 5th percentile! Hurray! We are also happy to share that Henry has had “catch up” growth! Based on his weight from the last couple of visits, the Nutritionist calculated that he is gaining an average of 13g per day. Typical growth for a child his age is around 5g per day. “Catch up” growth for preemies is expected to be between 10g and 20g per day. She also calculated that for Henry to have “catch up” growth, he needs to consume 900-1100 calories per day. Over the holidays, his average daily calorie consumption was 980 calories. Go, Henry! He now weighs 19lb, 0.5oz!!!

Henry seems to be tolerating his medications well and they seem to be dosed properly. He is taking Prevacid for reflux, Pulmicort for Eosinophilic Gastritis, and Periactin as an appetite stimulant. He is also taking a Probiotic supplement and Digestive Enzymes for digestive health and a daily multivitamin. Although the Periactin is an appetite stimulant, the Pulmicort (which is a steroid) also has a side effect of increased hunger. We’re not sure if one or both are helping, but we can definitely see that Henry has a bigger appetite than he used to. Henry’s feeding therapist, Krisi, asked me today if it was ok to use Henry’s case as an example when giving seminar presentations. She said that Henry is a textbook example of a child who requires the appropriate medications for GI comfort in order to properly eat. Unfortunately, many feeding therapists do not work in a hospital setting and are not able to communicate freely with the medical staff concerning GI needs. In addition, many feeding therapists and doctors have the belief that feeding aversions are primarily behavioral. I strongly believe that feeding aversions are due to an underlying physiological discomfort. Unfortunately, due to common beliefs, many children continue with behavioral feeding issues once their conditions are addressed because identifying the cause for discomfort has not been a priority (or a realized need). I am thrilled that Krisi would like to use Henry’s case to help educate medical staff and correct the common belief!

Henry has also done well with his physical development. He only has one milestone left to reach - jumping! His Physical Therapist said that once he learns how to jump, we can reduce his PT appointments to every other week! Continuation of PT after this last milestone will focus on building muscle strength as Henry still has low muscle tone.

Of course, there always seems to be another bump in the road to round things out! Before the holidays, we discovered that Henry has a hernia. We meet with the GI surgeon later this month to check it out and determine our path forward. We have heard that sometimes the medical team will decide to wait and repair hernias in a couple of years. We’ll see… I wouldn’t be surprised if it is decided to repair the hernia later this year, and possibly do a follow-up endoscopy to check his Eosinophilic Gastritis at the same time.

During Stewart’s school trackout in December, we enrolled him in an indoor soccer camp. This was the first camp Stewart has been to that wasn’t associated with the YMCA. Although he was a bit sore, he loved it! Since Stewart loves soccer, we looked into enrolling him for the winter season. The coaches were very impressed with his skills and invited him to be on the Select 6-7yr Team! This was a great surprise, as you have to be invited to play on the Select Team! We are very excited and are looking forward to his first game this Saturday!